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euromodulation is among the fastest-growing areas of medicine, involving many diverse specialties and affecting hundreds of thousands of patients with numerous disorders worldwide. It can briefly be described as the science of how electrical, chemical, and mechanical interventions can modulate the nervous system function. A prominent example of neuromodulation is deep brain stimulation (DBS), an intervention that reflects a fundamental shift in the understanding of neurological and psychiatric diseases: namely as resulting from a dysfunctional activity pattern in a defined neuronal network that can be normalized by targeted stimulation. The application of DBS has grown remarkably and more than 130,000 patients worldwide have obtained a DBS intervention in the past 30 years—most of them for treating movement disorders. This Frontiers Research Topics provides an overview on the current discussion beyond basic research in DBS and other brain stimulation technologies. Researchers from various disciplines, who are working on broader clinical, ethical and social issues related to DBS and related neuromodulation technologies, have contributed to this research topic.
Informed Consent --- Deep Brain Stimulation --- Depression --- Neurosurgery --- Movement Disorders --- Neuromodulation --- Enhancement --- Neuroethics --- Philosophy
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Whilst the treatment of mortal remains was largely predetermined in previous generations as an essential part of their respective cultures, the significance of the commandment to respect "dignity" and "piety" has nowadays become more unclear. Modern pluralism makes guidelines of behavior questionable, for example concerning burial, autopsy, or the use of body parts for transplant, scientific or teaching purposes, if this has not been legitimized by the "self-determination right" of the individual. At the same time, the "informed consent" appears as a passepartout for any kind of handling a corpse, even though it may be controversial, as in a commercial public exhibition. The interdisciplinary volume, which resulted from the 2nd Göttinger Symposium of the Center for Medical Law, deals with the wide field of "correct" intercourse with a corpse from the perspective of theology and medicine philosophy, medical law, anatomy and law medicine. Während früheren Generationen der Umgang mit den sterblichen Überresten als essentieller Bestandteil ihrer jeweiligen Kultur weithin vorgegeben war, ist der Bedeutungsgehalt des Gebots zur Achtung von „Würde“ und „Pietät“ heute mehr denn je unklar geworden. Der moderne Pluralismus lässt Verhaltensvorgaben etwa bei der Bestattung, der Obduktion oder der Verwendung von Körperteilen zu Transplantations-, wissenschaftlichen oder Lehrzwecken fragwürdig erscheinen, wenn dies nicht durch das „Selbstbestimmungsrecht“ des Einzelnen legitimiert worden ist. Zugleich erscheint der „informed consent“ als Passepartout für jeden beliebigen Umgang mit Leichnamen, mag er wie bei einer kommerziell geprägten öffentlichen Zurschaustellung gesamtgesellschaftlich auch noch so kontrovers sein. Der interdisziplinäre, aus dem 2. Göttinger Symposium des Zentrums für Medizinrecht hervorgegangene Band behandelt das weite Themenfeld des „richtigen“ Umgangs mit dem Leichnam aus Sicht von Theologie und Medizinphilosophie, von Medizinrecht, Anatomie und Rechtsmedizin.
Informed consent (Medical law) --- Dead bodies (Law) --- Dead bodies (Law). --- treatment of mortal remains --- Anatomie --- Obduktion --- Totgeburt
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This book is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident. It is a training tool to fill the gap between research ethics guidelines, and their implementation 'on the ground'. The case studies, therefore, focus on 'relational' ethics: ethical actions and ideas that emerge through relations with others, rather than in regulations.
Africa --- Globalization --- Ethical issues & debates --- Ethnic studies --- ethical dilemmas --- global health --- research --- ethic guidelines --- Case study --- Ethics --- Family --- HIV --- Informed consent --- Medical research --- Public health --- Social science
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This book explores the challenges of informed consent in medical intervention and research ethics, considering the global reality of multiculturalism and religious diversity.
Informed consent (Medical law) --- Consent, Informed --- Consent to treatment --- Disclosure, Medical --- Medical disclosure --- Treatment, Consent to --- Consent (Law) --- Medical ethics --- Medical personnel --- Patient education --- Involuntary treatment --- Patient refusal of treatment --- Malpractice --- Religion and beliefs
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While HIV/AIDS is a global public heath challenge, its impact is arguably greatest in the Sub-Saharan Africa (SSA), where new infections account for approximately 66% of the total number of HIV-positive persons globally. In SSA, medical, social, and economic resources are limited, thus necessitating innovative approaches to disease prevention. One of the mechanisms of prevention that is most promising occurs through HIV disclosure to family members (e.g., adult sexual partners) generally, and to children in particular. Our emphasis in this eBook is on HIV disclosure to children because it has multiple benefits, including improved adherence to antiretroviral medication treatment and understanding at an early age of the impact of sexual activity on the spread of HIV. While there is a noticeable gap in research on HIV disclosure to younger children, some of the general reasons for non-disclosure include concerns about fear of adult partners leaving relationships, and that children are too young to comprehend the severity of the situation and may tell others outside the family. Thus, it is critical to better understand how the HIV disclosure process happens (or does not happen) within HIV-affected families, as well as the best practices on how to disclose. In this eBook, we present a combination of empirical research studies and critical literature reviews that investigate the reasons for and for not disclosing HIV status within HIV-affected families and provide evidence-based practices that could be adopted by healthcare professionals to help HIV-positive parents facilitate disclosure activities within these families. This information can also be used by researchers, practitioners, and stakeholders who are in a position to influence policies on effective HIV disclosure practices, guidelines, and programs.
AIDS (Disease) --- Informed consent (Medical law) --- Privacy. --- Reporting. --- HIVAIDS --- Resource-poor setting --- HIV disclosure --- Parental HIV status disclosure --- Sub-Saharan Africa (SSA) --- Child HIV status disclosure --- HIV disclosure process
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This open access book addresses a variety of issues relating to bioethics, in order to initiate cross-cultural dialogue. Beginning with the history, it introduces various views on bioethics, based on specific experiences from Japan. It describes how Japan has been confronted with Western bioethics and the ethical issues new to this modern age, and how it has found its foothold as it decides where it stands on these issues. In the last chapter, the author proposes discarding the overarching term ‘Global Bioethics’ in favor of the new term, ‘Bioethics Across the Globe (BAG)’, which carries a more universal connotation. This book serves as an excellent tool to help readers understand a different culture and to initiate deep and genuine global dialogue that incorporates local and global thinking on bioethics. Bioethics Across the Globe is a valuable resource for researchers in the field of bioethics/medical ethics interested in adopting cross-cultural approaches, as well as graduate and undergraduate students of healthcare and philosophy.
Medical ethics. --- Theory of Medicine/Bioethics. --- Biomedical ethics --- Clinical ethics --- Ethics, Medical --- Health care ethics --- Medical care --- Medicine --- Bioethics --- Professional ethics --- Nursing ethics --- Social medicine --- Moral and ethical aspects --- Bioethics. --- Biology --- Life sciences --- Life sciences ethics --- Science --- Theory of Medicine/Bioethics --- Health Sciences --- Brain death --- Informed Consent --- Advance Directives --- Regenerative medicine --- Research Regulation --- Open Access --- Medicine: general issues
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La démocratisation des pratiques d’aide et de soin est au cœur des politiques sanitaires, sociales et médico-sociales depuis la fin du xxe siècle. Rechercher le consentement, éviter la contrainte en constituent les deux injonctions dominantes. En effet, les règles qui encadrent les pratiques de prise en charge visent à réduire la dimension contraignante de l’aide, à garantir le droit à l’information et la participation des personnes, ainsi que leur protection. En situation, les professionnels sont souvent confrontés à des conflits normatifs qui deviennent indécidables quand les personnes souffrent d’une altération de leurs capacités mentales. Comment faire alors, lorsque, à défaut de pouvoir « protéger sans contraindre », il faut envisager de « contraindre pour protéger » ? Le présent ouvrage rend compte de ces dilemmes à partir d’enquêtes empiriques menées dans le champ de la santé mentale. Qu’ils soient conduits à « forcer », à « influencer », à « coopérer », ou encore à « persuader » ou à « empêcher », les professionnels de l’aide et du soin sont orientés par deux impératifs parfois contradictoires : l’impératif de protection d’un côté, l’impératif de liberté de l’autre. La régulation de leurs pratiques s’appuie sur deux registres : celui des droits fondamentaux, sans cesse réaffirmés ; celui des règles qui sont produites en continu au plus près des situations. Un tel mode de régulation questionne à nouveaux frais quelques-uns des enjeux actuels de la démocratie sanitaire. Cet ouvrage est issu des travaux menés dans le cadre du Collectif Contrast.
Mentally Ill Persons --- Mentally Ill Persons--legislation & jurisprudence --- Commitment of Mentally Ill --- Ethics, Medical --- therapy --- Forensic Psychiatry --- Professional ethics. Deontology --- Medical law --- France --- Hospitalisation psychiatrique sans consentement --- Consentement éclairé (droit médical) --- Malades mentaux --- Internement d'un malade mental --- Santé mentale --- Personnes atteintes de troubles mentaux. --- Droit --- Soins --- législation et jurisprudence --- France. --- Informed consent (Medical law) --- Psychiatric hospital care. --- Involuntary treatment --- Consentement éclairé (droit médical) --- Law --- sociologie --- droit --- psychologie
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This open access book aims to clarify the term „evidence-based medicine“ (EBM) from a philosophy of science perspective. The author, Marie-Caroline Schulte discusses the importance of evi-dence in medical research and practice with a focus on the ethical and methodological prob-lems of EBM. The claims that EBM can herald a new theory of epistemology and a Kuhnian paradigm will be refuted. The solution is to describe EBM as a necessary development in medicine to deal with the increasing amount of evidence and medical data without loosing the single patient out of sight. Contents The methodology of evidence-based research Informed consent and shared decision making in EBM (Evidence-based medicine) Knowledge does not equal evidence – what to do with what we have evidence for? Homeopathy – a case in point why EBM is so important – or „the plural of anecdote is not data.“ Target Groups Lecturers and students in the areas of medicine and philosophy of medicine Researchers in philosophy of medicine, medical doctors, ethicists, philosophers and medical activists The Author M.-C. Schulte has studied philosophy and history in the US and finished her MSc in philoso-phy and history of science at LSE. She did her PhD in philosophy of science, focus on medi-cine, at Hamburg University. She works freelance in an advisory capacity for NGOs working in the medical field and writes articles in her area of expertise.
Philosophy and science. --- Medicine—Philosophy. --- Medicine. --- Philosophy of Science. --- Philosophy of Medicine. --- Medicine/Public Health, general. --- Health Workforce --- Science and philosophy --- Science --- Philosophy of Science --- Philosophy of Medicine --- Medicine/Public Health, general --- Clinical Medicine --- Philosophy of medicine --- Hahnemann Edzard Ernst --- Jeremy Howick --- Thomas Kuhn --- Homeopathy --- Epistemology --- Informed consent --- ECMO --- Tuskegee --- Placebo --- Bench to bedside --- External validity --- Randomised controlled trials --- Evidence-based medicine --- Open Access --- Philosophy of science --- Philosophy --- Medicine: general issues
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A cross-disciplinary approach is offered to consider the challenge of emerging technologies designed to enhance human bodies and minds. Perspectives from philosophy, ethics, law, and policy are applied to a wide variety of enhancements, including integration of technology within human bodies, as well as genetic, biological, and pharmacological modifications. Humans may be permanently or temporarily enhanced with artificial parts by manipulating (or reprogramming) human DNA and through other enhancement techniques (and combinations thereof). We are on the cusp of significantly modifying (and perhaps improving) the human ecosystem. This evolution necessitates a continuing effort to re-evaluate current laws and, if appropriate, to modify such laws or develop new laws that address enhancement technology. A legal, ethical, and policy response to current and future human enhancements should strive to protect the rights of all involved and to recognize the responsibilities of humans to other conscious and living beings, regardless of what they look like or what abilities they have (or lack). A potential ethical approach is outlined in which rights and responsibilities should be respected even if enhanced humans are perceived by non-enhanced (or less-enhanced) humans as “no longer human” at all.
cyborgs --- implants --- posthumans --- Homo technologicus --- Homo sapiens --- human-machine interaction --- cyborg --- enhancement technology --- prosthesis --- brain–computer interface --- new senses --- identity --- neuroprosthesis --- patent law --- copyright law --- cognitive liberty --- international law --- evolution --- cultural technology --- human enhancement --- engineering --- bionics --- biotechnology --- disability --- marketing --- cultural studies --- Disney --- supercrip --- human enhancements --- autonomy --- informed consent --- moral enhancement --- vulnerability --- numeric identity --- military ethics --- human–machine interaction --- upgrading humans --- superhumans --- gene editing --- embryo selection --- CRISPR --- cognitive enhancement --- assisted reproductive technologies (ART) --- public opinion --- in vitro gametogenesis (IVG) --- genome-wide association studies (GWAS) --- brain–computer interface (BCI) --- brain–machine interface (BMI) --- ethical --- legal and social Issues (ELSI) --- neuroethics --- narrative review --- intellectual property --- copyright --- neuropolitics --- brain science --- voting --- human rights --- ethics --- discrimination --- racism --- speciesism --- ableism --- human–robot interaction --- mind --- sense of agency --- alienation --- n/a --- brain-computer interface --- brain-computer interface (BCI) --- brain-machine interface (BMI) --- human-robot interaction
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This republished Special Issue highlights recent and emergent concepts and approaches to water governance that re-centers the political in relation to water-related decision making, use, and management. To do so at once is to focus on diverse ontologies, meanings and values of water, and related contestations regarding its use, or its importance for livelihoods, identity, or place-making. Building on insights from science and technology studies, feminist, and postcolonial approaches, we engage broadly with the ways that water-related decision making is often depoliticized and evacuated of political content or meaning—and to what effect. Key themes that emerged from the contributions include the politics of water infrastructure and insecurity; participatory politics and multi-scalar governance dynamics; politics related to emergent technologies of water (bottled or packaged water, and water desalination); and Indigenous water governance.
orientation knowledge --- WEF Nexus --- Latin America --- water politics --- water rights --- political ecology --- Chile --- national interest --- Africa --- depoliticization --- social control --- Central Asia --- Belo Monte --- nibi (water) --- Canada --- planning --- Indigenous water governance --- scale politics --- UNDRIP --- spatio-temporal --- women --- participation --- participatory development --- FPIC --- remunicipalization --- governmentalities --- integrated water resource management (IWRM) --- colonization --- drinking water --- power --- free --- community-based research --- environmental flows --- Two-Eyed Seeing --- Indigenous water --- water security --- water management --- water colonialism --- hydropower --- groundwater --- packaged drinking water (PDW) --- repoliticization --- Jakarta --- Indigenous knowledge --- Tajikistan --- governance --- settler colonialism --- decision-making processes --- informality --- first nations --- Water Users’ Associations --- irrigation --- OECD --- giikendaaswin --- Brazil --- UN Declaration on the Rights of Indigenous Peoples --- Lesotho --- environmental justice --- hydrosocial --- Colombia --- law --- Cochabamba --- kitchen gardens --- desalination --- mining --- water --- environmental assessment --- First Nations --- water quality --- Anishinabek --- urban India --- urban water infrastructure --- re-theorizing --- politics --- bottled water --- Egypt --- urban water --- Bolivia --- dams --- Yukon --- decentralization --- narrative ethics --- water justice --- water insecurity --- political ontology --- religious difference --- energy policy --- international development --- water ethics --- Cairo --- infrastructure --- legal geography --- practices of mediation --- water governance --- risk --- Indonesia --- prior and informed consent --- PES
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